As I said, I was fortunate to be plugged into numerous online sources for support during my recovery from my hysterectomy, and for support related to endometriosis and adenomyosis. If it wasn't for these sources, I don't think I would have made it through my recovery because my "real" friends were far from supportive. So, I am very happy to share these gems with you.
Endometriosis and Adenomyosis Support
Endometriosis Research Center (http://www.endocenter.org/). A wealth of information on endometriosis. They have an active listserve and a facebook page. What's really great is that they do not take funds from pharmaceuticals. The ladies on this listserve were so helpful in sharing my grief over endometriosis and adenomyosis.
Center for Endometriosis Care (www.centerforendo.com). These are the people who gave me my life back. They are ENDOMETRIOSIS SPECIALISTS. They ONLY SEE endometriosis patients. They know how to meticulously remove/excise ALL endometriosis.
http://www.endometriosissurgeon.com/. This endometriosis specialty center in Bend, Oregon. They too are specialists of endometriosis who remove/excise ALL endometriosis.
http://www.endometriosistreatmentnewyork.com/. This is another endometriosis specialty center located in New York City.
Hysterectomy Support
Hystersisters (http://www.hystersisters.com/). LIFESAVERS!!!! An online, VERY ACTIVE forum for women who expect to or have undergone hysterectomies. I learned more from these ladies than I have from any health care professional. LOVE THEM!!!
And, one of my favorite blogs:
Although she doesn't know this, this blog got me through some really tough times as I was grieving after my hysterectomy. A very gifted writer. http://www.mudandlotus.com/
Tuesday, March 16, 2010
Blogging Virgin
So, this is my very first post on my very first blog!!! Very exciting.
A brief introduction: I have dealt with endometriosis since I was a teenager.....I remember the pain started during my 3rd menstrual period (I was 13 years old). In fact, the evening of my first middle school dance, I remember the pain being so intense that I vomited all over my new outfit (my cool "guess overalls"), my bathroom, and even had vomit coming out of my nose. I so wanted to be a "normal" teenager, that I still went to the dance (after ingesting about 1000 mg of advil). Of course, back then, I never knew why I was in so much pain.
Fast forward 5 surgeries, 9 doctors, and 20 years later, here I am. I had my endometriosis completelly excised at the Center for Endometriosis Care in Atlanta, which was supposed to take care of the pain. Unfortunately, 1 year later, the pain came back with a vengeance.......I went back to Atlanta to learn that I also had Adenomyosis. The only way to deal with the adenomyosis was a hysterectomy.
Since my hysterectomy 3 years ago, I've had many ups and downs. Some because of the hysterectomy, and other downs because for the first time in my life, I began processing how every aspect of my life has been plagued by endomtriosis. My "DH" has been a pillar of support. I've also benefitted so much from online communities and blogs. At this point, I feel that I've been lurking in cyberspace too long, and it is time for me to also give back and share my experiences.
So, here I am! In this blog, I hope to share my daily struggles and triumphs as I continue to make sense of the monster that is endometriosis.
A brief introduction: I have dealt with endometriosis since I was a teenager.....I remember the pain started during my 3rd menstrual period (I was 13 years old). In fact, the evening of my first middle school dance, I remember the pain being so intense that I vomited all over my new outfit (my cool "guess overalls"), my bathroom, and even had vomit coming out of my nose. I so wanted to be a "normal" teenager, that I still went to the dance (after ingesting about 1000 mg of advil). Of course, back then, I never knew why I was in so much pain.
Fast forward 5 surgeries, 9 doctors, and 20 years later, here I am. I had my endometriosis completelly excised at the Center for Endometriosis Care in Atlanta, which was supposed to take care of the pain. Unfortunately, 1 year later, the pain came back with a vengeance.......I went back to Atlanta to learn that I also had Adenomyosis. The only way to deal with the adenomyosis was a hysterectomy.
Since my hysterectomy 3 years ago, I've had many ups and downs. Some because of the hysterectomy, and other downs because for the first time in my life, I began processing how every aspect of my life has been plagued by endomtriosis. My "DH" has been a pillar of support. I've also benefitted so much from online communities and blogs. At this point, I feel that I've been lurking in cyberspace too long, and it is time for me to also give back and share my experiences.
So, here I am! In this blog, I hope to share my daily struggles and triumphs as I continue to make sense of the monster that is endometriosis.
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